Q. Our son, Isaiah, has high-functioning Autism Spectrum Disorder, and we are thrilled to say that he was recently accepted into trade school. I heard from a friend at work about the ABLE Act. I don’t know much about it, but I’ve heard it may be something that can help my son with his education […]
Being Her Brother’s Caregiver
A year ago, Helen Ries’s mother died unexpectedly, and she became the primary caregiver of her brother, Paul Knoll. Knoll has Down syndrome and had lived with his parents most of his life. Ries admits that her first year as a caregiver wasn’t easy, as she attempted to maintain the same standards for her brother […]
On Pins and Needles: Caring for Those with Mental Illness
As many as 8.4 million Americans are providing care to an adult with an emotional or mental health issue. Often, these family caregivers feel the impact of the disease as they struggle to care for their loved ones and to bridge health care systems, mental health providers, and community supports. The National Alliance for Caregiving […]
New iPhone App Could Transform How We Diagnose Autism
Dear Commander Bun Bun, I heard somewhere that a new app has been developed by Apple that can be used to diagnose Autism Spectrum Disorder (ASD) using facial expressions. Since you are attuned to what’s going on with technology, have you heard anything about this and how it works? Thanks, Di Agnosis —- Dear Di, […]
Debunking the Myths About Autism
Image from Pathfindersforautism.org Q. We recently found out that my son, Freddy, has been diagnosed with Autism Spectrum Disorder. After accepting the fact that things will be more challenging for him socially and academically (he is also learning disabled), I told my friends and family about the diagnosis. The first thing my mother mentioned was, […]
Living with Fewer Rights than a Convicted Felon
Q. My 30-year-old cousin, Donnie, is intellectually disabled. He works at the Wendy’s near my house, serving burgers and greeting customers with a smile. He has a bank account, saves most of the money he earns, makes a mean chili, and drives to work each day. Yet, his mother has guardianship over him, leaving him […]
Self Care for a Special Needs Parent
Dear Angel, My daughter, Valerie, has autism spectrum disorder (formerly known as Asperger’s Syndrome, but now under the ASD umbrella). She is very bright, and for the most part is in an inclusive environment at school. However, when she gets home, she has panic attacks often, and needs constant attention. I spend all of my […]
How Can The ABLE Act Help My Special Needs Daughter?
Dear Baxter, My daughter has intellectual disabilities. I read in one of your newsletters that Virginia was the first state to enact the ABLE Act. I don’t know much about it, but it may be something that can help my daughter with her education expenses, without jeopardizing her benefits. Can you explain more? Also, who […]
Virginia Becomes First State to Approve ABLE Act
Virginia Governor Terry McAuliffe Signs ABLE Act into Law (Source: NBC 29) Q. Our son, Jeff, has autism spectrum disorder and will likely need assistance throughout his lifetime. We are looking for ways to save for his future without jeopardizing his eligibility for Social Security and other government programs. I read about the ABLE act, and how […]
Have a Piece of Cake. . .
It’s Medicaid’s 50th Birthday! Q. My son, Sam, turns 50 this year. Besides his birth, I know that something else significant happened in 1965 — President Lyndon Johnson signed Medicaid into law. I know you help people apply for Medicaid to protect their hard-earned assets from the catastrophic costs of long-term care, so I thought you […]
How to Choose Trustees for a Special Needs Trust
Mark is an autistic adult who resides in a Medicaid-funded residential program in upstate New York. Before his parents passed away, his mother established a Special Needs Trust for him, which held in excess of $2 million, with the two co-trustees being an attorney and a well-known trust company. As a result of the trust, […]
Apps for those with Autism Spectrum Disorder (ASD)
Dear Saki and Alley, My daughter with ASD often gets frustrated when playing on the iPad, because some of the apps are too fast paced, or she doesn’t understand them. Do you know of any apps that someone with ASD could enjoy? Thanks! Honor Tablett — Dear Honor, Saki and Alley no longer live at the office. They […]
He’s Disabled But Has Full Mental Capacity- Why Can’t He Initiate His Own Trust?
Q1.My friend, Ken, is physically disabled, but has full mental capacity. His parents and grandparents are no longer around. He would like to initiate a Special Needs Trust for himself, since he wants to ensure that he is protected against the risk of impoverishment, but he can’t. I heard about The Special Needs Trust Fairness […]
Pooled Special Needs Trusts
Dear Commander Bun Bun, I am considering a pooled special needs trust (managed by a non-profit organization) for my daughter, Shannon, who is intellectually disabled. What are some of the benefits and limitations? Thanks, Sheena Eads-Attrust —– Dear Sheena, Pooled third-party trusts are an alternative to setting up your own special needs trust if you […]
Can Someone Recover from Autism?
When Tyler was one, his parents began to notice certain behaviors that seemed atypical. He didn’t make eye contact or wave hello or goodbye, and he often seemed to be in his own world. As a toddler, he began lining up his toys, having tantrums, and walking on his toes. When he was a bit […]
Holiday Tips for Parents of a Special Needs Child
Dear Saki and Alley, I recently got remarried and we are going to my sister’s house for the holidays. My new stepson, Sean, is autistic and doesn’t do well with new places or changes to his routine. Do you have any suggestions for how I can help my new husband make the holidays a happy […]
A New Act to Help Special Needs Families
Q. My 9-year-old daughter, Noelle, is intellectually disabled. The costs for her therapy and assistive technology are quite high, and we are in the process of applying for government assistance (SSI). Despite our struggles to make ends meet, her grandparents and my husband and I would like to save as much as we can […]
Special Programs for Special Needs
Earlier this year, the Center for Disease Control (CDC) announced an alarming statistic regarding the prevalence of autism spectrum disorder (ASD), stating that is now affects 1 in 68 children (a 30% increase from 1 in 88 two years ago). The new CDC statistics raise significant concerns about access to care, because autism is a lifelong disorder and the […]
Financial Security for a Special Needs Child
Q. Our 11-year-old son, Nathan, has autism and will likely need care for the rest of his life. This has put quite an emotional and financial strain on my husband and me. My parents, who are wealthy, are willing to help, but we’ve heard it’s not a good idea to put our son in their estate planning documents because it might affect his ability to […]
Guardianship Revisited: a Serial 911-Caller and a Bigamist
A “guardian” of an adult is a person appointed by the court who is responsible for the personal affairs of an incapacitated adult, including responsibility for making decisions regarding the adult’s support, care, health, safety, habilitation, education, therapeutic treatment, and residence. A “conservator” is also appointed by the court, and is responsible for managing the estate […]